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What are you thinking?

In August we sent an email to all Support Group Leaders asking them what’s on their minds? What concerns or needs do they have for their Groups?

Following is a consolidated summary of responses:

  • We don‘t have the support of a Parkinson’s Specialist Nurse.
  • Caregivers are bearing the brunt of the lockdown – no visitors and little contact with other family members.
  • Lack of exercise and social opportunities due to COVID-19 lockdown. We feel isolated.
  • Increase in anxiety due to COVID-19 lockdown.
  • Less access to neurologists due to travel restrictions.
  • We’re experiencing low numbers at meetings and our Group needs a reboot.
  • Our Committee needs refreshing.
  • Participants are unable to commit to a formal telephone tree to support one another.
  • We miss the face time allowed by meeting in person.
  • Formal meetings are just too hard at the moment, even though our area is not in lockdown. So we are limiting ourselves to coffee gatherings to maintain contact.
  • Our meetings are continuing OK via Zoom – including having guest speakers.

Do you have any feedback to add so Parkinson’s NSW can gain a greater understanding of your challenges? If so, please email:

More resources:  

  • For a one-stop shop of information, support, and connection with support, call the Parkinson’s NSW InfoLine: 1800 644 189

The InfoLine can connect you with a Parkinson’s Specialist, Counsellor, NDIS experts, a Parkinson’s-specialised Personal Trainer, our Support Group Coordinator, and marketing specialists who can help your Group to grow.

It also maintains a database of Parkinsons-experienced Allied Health providers throughout NSW.

  • Connect with one or many of our free, information-rich zoom sessions hosted by a variety of knowledgeable experts in their fields. Click here for a calendar of upcoming sessions.
  • See also Parkinson’s NSW videos and recordings of Zoom meetings on our YouTube channel:
  • Keep an eye on the Parkinson’s NSW COVID-19 web page here for the latest updates and advice.