You are not alone
When Parkinson’s comes into your life, you may be uncertain about what the future holds for you and your loved ones. Receiving a Parkinson’s diagnosis can be frightening. Every hour of every day, someone in Australia is told they have Parkinson’s. Because we are here, no one has to face Parkinson’s alone.
Dealing with a Parkinson’s Diagnosis
People who have been recently diagnosed often feel very confused. They may be overwhelmed with questions and feel emotionally distressed and they may not know where to get help. Parkinson’s NSW can be a valuable lifeline. We offer information, counselling and information events for people who have been recently diagnosed.
Living with Parkinson’s
It can take many years for symptoms to progress to a point where they cause serious problems. Many people find that knowledge reduces their fear of the unknown. We can help with information about symptoms as they arise and advise on how best to manage them.
Caring for Someone with Parkinson’s
If you are a family member or carer, you will probably have many questions and will need information about how to manage various symptoms and provide emotional and practical help to your loved one. We understand that caring can take its toll on the carer, which is why our support is here for you too.
Services we offer
People living with Parkinson’s have different needs. Whether you have received a Parkinson’s diagnosis, are a partner, carer, relative or friend, we understand that you will want help from different services at different times. That is why we offer the following; InfoLine, Counselling, local Support Groups, Information and Education Events.
Our InfoLine is staffed by health professionals and is the first point of call for all your questions. Our Information Officers can help you gain a better understanding of Parkinson’s, give advice, and provide the latest research. We can also point you in the right direction for services and other supports in your local area.
Please call our InfoLine on 1800 644 189* to receive your personalised information pack which may include Parkinson’s Fact sheets, service brochures and more
Living with Parkinson’s can be isolating, so meeting other people who understand can have a positive impact. We coordinate a network of more than 70 Support Groups across New South Wales, along with special networks for people with early onset Parkinson’s (under 60 years). These groups give you the chance to share experiences, hear about new developments from health professionals and meet a new circle of friends.
See the Support Group page for details of our many regional and metropolitan Support Groups.
No matter how you are affected by Parkinson’s, our specialist counsellors are skilled in the issues surrounding Parkinson’s. You can visit us for a private, face to face session or talk to us over the phone. Our specialist counsellors offer a confidential and supportive environment for you to talk things through. Contact InfoLine on 1800 644 189 to arrange a confidential appointment.
Information and education
We are committed to keeping you informed about the latest treatment options, research, programs and services through our education seminars and workshops. These events are held regularly across regional and metropolitan New South Wales. The education seminars are available for people living with Parkinson’s, their partners, families and carers as well as health professionals including aged care workers and allied health professionals.
Community based neurological nurses
We currently have specially trained neurological nurses in regional areas across New South Wales. The nurses may assist with the management of Parkinson’s, offer emotional support and education. Our goal is to increase the number of nurses in communities across NSW.
Support for research
In Australia every hour of every day someone is diagnosed with Parkinson’s. Although we do not yet have a way to cure or prevent Parkinson’s, worldwide research gives us better prospects through new medications, treatments and therapies. That is why we raise funds to award annual grants in the field of neurological research.
Campaigns and events
As well as helping you directly, we also work to improve awareness and understanding of Parkinson’s in the wider community. We collaborate with hospitals, clinics, health districts, primary health care networks and care facilities to provide the best possible care for people with Parkinson’s.
We work hard to keep Parkinson’s on the health agenda politically. By lobbying at State and Federal levels we are continuously campaigning for better services and treatments for people affected by Parkinson’s.
Exercise along with knowledge and medication management are effective ways to improve quality of life.
Living well means paying attention to your emotional, mental and physical health. That especially applies if you are living with Parkinson’s, or caring for someone who is. Our Living Well with Parkinson’s information sheets will inspire and assist you to get the most out of your life
As the Peak Body for the NSW Parkinson’s community, we want to help you navigate the NDIS so you can obtain funding to live your best life with the support you need.
Parkinson’s NSW is now an NDIS Registered Service Provider. This certification enhances our existing services for eligible people living with Parkinson’s.
PNSW Connect is a single point of contact for your NDIS questions and requirements. For evidence-based help, information and advocacy call the PNSW Connect team on 1800 644 189.
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- Parkinson’s NSW Services
- National Disability Insurance Scheme
- Support for NDIS Provider Program
- Exercise & Living Well with Parkinson’s
- Support Groups
- Parkinson’s Passport
- Take part in research
- Act On Parkinson’s